Mark E. Smith is a 38 year-old with cerebral palsy. He is the author of several books and founding editor of WheelchairJunkie.com. On his website he maintains a blog entitled PowerchairDiaries. He is also manager of Pride Mobility Products, a wheelchair manufacturer. Thank you to Debbie for informing me of Mark's blog and his incredible story.
Ian Pearl, a Huffington Post blogger with Muscular Dystrophy has made the headlines recently in his fight against his health insurance company, Guardian. But it is not just a fight with his insurance company, it is a fight for his life! I am rooting for you, Ian! (A full post on this coming soon.)
Nancy Mairs has written several books and essays, the majority of which are devoted to what life is like with Multiple Sclerosis.
Shiloh Pepin, more famously known as "mermaid girl" was born with Sirenomelia or mermaid syndrome. Sadly, she died Friday, October 23rd at the age of 10 do to complications from pneumonia. May you rest in peace, Shiloh.
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